Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum topic “Anxiety and Depression with MS” from April 30.
Last updated May 5, 2023 As the year comes to a close, I find myself in a reflective state. This mild nostalgia visits each December and accompanies me into the New Year. I usually honor this slight melancholy by thinking of all that has transpired in a mere 365 days.
Not long ago, I dreamed I was running. Again. It was the first time I’d had the dream in a while. It was always the same, “Been Caught Stealing,” or something like it roaring in my headphones, me in stride and rhythm with the…
The L300, made by Bioness, is a functional electronic stimulator. It’s a cuff that I wear just below my left knee. It stimulates a nerve that lifts my foot and helps keep it from dragging. When I first got my L300 in 2012, it was a blessing.
Dealing with bundled change, loss, and multiple sclerosis (MS) has turned out to be more of a challenge than I could have imagined, and I have not been very good at it. Coming to terms with the loss of a loved one is overwhelming on its…
MS Patients Report Beneficial Effects of Cannabis with Few Side Effects, Survey Shows This survey agrees with what I’ve found in my limited experience with cannabis (in my case, CBD oil). A small amount can ease some of my spasticity and help me to get a better…
My eldest son, like thousands of other kids in the world, struggles in school. He’s partially deaf, and some of his challenges stem from inescapable biological factors. However, there’s also a component of learned helplessness that I must address. For many years, he felt, or in some cases…
Usually, I have an idea of what I’m going to write. Today, all I feel is a bit meeeeugh … Which is more a sound of ennui than a recognizable word. In these days of multimedia, I suppose I should record it and insert the clip into the text, but…
Many years ago a woman I know who has multiple sclerosis (MS) became pregnant. After her child was born her MS became significantly worse. There have been many studies on the impact of pregnancy on someone with MS, with most concluding that the number of MS relapses are…
Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question, inspired by the forum topic “Books…” of May 4, 2018: What are some good books that focus on MS?…
Ever since I can remember, my family has had a real Christmas tree. Finding the perfect tree became a magical adventure. We often cut our own, but as I grew older, we would choose one from a local lot. My mom would play traditional Christmas songs while…
Living in the U.S., where disease-modifying therapies (DMTs) seem to be prescribed as a matter of course to people with multiple sclerosis (MS), I was surprised that it doesn’t seem to be the case across the pond in the U.K. An article just published on the Multiple…
Use of Hospital Palliative Care by MS Patients in US Rose 30-fold Between 2005-14, Study Finds Palliative care emphasizes prevention and relief of a patient’s suffering. Its goal is to improve the quality of life of that patient and his or her family. It’s usually thought of…
There’s a joy in going on a long journey in which I get the luxury of sleeping through the whole thing. It’s practically magical. Or scientifically, like teleportation. I was there and now I’m here without any effort! I’ll never be able to afford a first-class bed on a…
Patients want to be more involved in their healthcare, but it’s not an easy process. I’ve written before about the hurdles we have to overcome to get some healthcare providers to communicate with us, to listen to what we have to say about our medical problems, and even…
In this season of thanks and giving, I have realized the beauty of receiving. I have recognized when to ask for help and how to accept assistance graciously. This has not been my strong suit in the past. I am most at ease with myself when I am of service…
Having lived with multiple sclerosis (MS) for over three decades, I have lots of stories to tell about my experience with the disease. Tales about dating, marriage, pregnancy, childbirth, motherhood, relationships, career, and so on. I’ve had MS for so long that sometimes it’s hard…
Over the past couple of weeks, two warnings have been issued about side effects of multiple sclerosis (MS) medications. First, the U.S. Food and Drug Administration warned about a slight risk of seriously worsening MS symptoms if someone who is using the disease-modifying therapy (DMT) Gilenya (fingolimod) stops using…
I remember the feeling of having a terrible cold or flu before I had multiple sclerosis (MS). The stuffy nose that made breathing nearly impossible. That elusive tickle in the back of my throat combined with a hacking cough. Cold and flu season is a miserable time, and I…
Artificial Intelligence May Help Reduce Dosage of Gadolinium in MRIs, Researchers Suggest There’s been concern recently about the accumulation of gadolinium in the brains of people who’ve had MRIs. Gadolinium is the dye that’s used to provide the “contrast” that can highlight lesions in the brain that might…
Even when a major holiday isn’t scheduled in a calendar month, I’m a pretty busy lady. I work a full-time job that requires me to be present and “on” most of every day. I also have to deal with Atlanta traffic, which is physically and mentally exhausting. I’m a…
So, “it” started on Monday. I have no idea what I’m dealing with. Is it a urinary tract infection, a relapse, a bird, or a plane? The superhero metaphor is warranted because, just like in “Avengers: Infinity War,” there will be no resolution by the end. Hmm, I’ve…
I’m coming up on the second anniversary of my Lemtrada (alemtuzumab) treatment. My first infusion round was the first week of December 2016. Round 2, delayed by four months, was done last April. So, it’s time to update my Lemtrada journey for you. Lemtrada, in case you’re not…
I am excited and thankful to share with you a new collaboration between iConquerMS and the National Multiple Sclerosis Society (NMSS). For several years, I have worked with the people at the Accelerated Cure Project (ACP), a nonprofit organization that is the overseeing body for iConquerMS, to…
If you are being treated with Gilenya, take note. The U.S. Food and Drug Administration is warning that if you stop using Gilenya (fingolimod), there’s a chance your MS could become worse. The FDA issued a safety alert saying that this only happens rarely, but when it does, the…
We live in a turbulent, violent, and hostile society. We wake up every day to news of another mass shooting, Mother Nature causing unstoppable damage, loud protests by politicians or citizens, or an exchange of angry barbs across social media. Bad news…
The holiday bustle has begun. As Thanksgiving approaches, I ponder the season and a lump forms in my throat. I am grateful to be here and for the blessings of family and friends. But my heart aches with grief for those loved ones who are no longer with me.
We all know how expensive health insurance can be. On the social media sites that I browse, I always see stories of people with MS who find themselves in a bind due to the healthcare system in the U.S. Some can’t work because their MS has robbed them of…
I’ve never liked carnival rides (except for roller coasters) because they make me dizzy. Walking sideways, feeling nauseous, and turning green is not my idea of a fun time! So, I go out of my way to avoid anything that can make my head spin. Yet, for some reason,…
MS-specific Lineage of Oligodendrocytes May Provide New Hints on MS Development Our immune system, according to this study, may not be the only thing playing a role in the development of our MS. The same cells that produce the myelin that coats our nerves may also be…
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