MS and Incontinence
Another of those things I was never warned about. Maybe if I’d been assigned a local MS nurse…
In the ‘80s, John Connor created the first regular column about the burgeoning London stand-up scene. In 1990 he wrote a book about its effect on the Edinburgh Festival: “Comics: A Decade of Comedy at the Assembly Rooms.” That year he also devised and ran a live topical stand-up team show at The London Comedy Store, The Edge (It was destroyed in 2020!). In 2009 John was diagnosed with relapsing-remitting MS, which cut short his main job as a TV casting director for “Black Books,” “My Family,” et al. Now, John writes “Fall Down Get Up Again,” an irreverent journey with MS.
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Another of those things I was never warned about. Maybe if I’d been assigned a local MS nurse…
I was going to write about something else this week and then … I got STONED! Those aren’t…
It was a government letter; I opened it with due trepidation. A call for jury service, so not bad…
Having not stood on a stage and attempted stand-up for some 30 years, I’m not in the habit…
As I write, I’m pain-free. This is important, but not for the obvious reason. I’m pain-free and can…
It’s been an incredibly bad few weeks, so I’m not surprised that I spent recent days wondering if…
In my youth, I hitchhiked the breadth of North America ― Canada, from east to west. I had 16…
After 10-odd ― indeed, increasingly odd ― years, I presumed I’d become something of a gnarled hand at MS.
It's Wimbledon fortnight. The tennis signifies it's the height of the British summer. You usually can tell it's an English summer because it rains for two weeks. Not this time. It's baking hot and the hallowed grass can't handle it! If U.S. President Donald Trump is right and there is no such thing as climate change, the least he could do is supply the All England Tennis and Croquet Club with the formula for his resilient head of hair. Everything thrown at him does seem to just bounce off. It would make the perfect surface for these changing times. And what has this to do with MS? Well, it seems I've turned into Maria Sharapova. And, no, it has nothing to do with drugs or a penchant for wearing ultra short skirts! John Connor & Sean Meo having a smashing time. A friend was over who hadn't seen me in my natural habitat, i.e., at home, for a long while. "Is all that noise normal?" she asked my wife, "Is John in any trouble?" "No," my wife tersely explained, "That's what he's like these days!" I've found that heaving my lumpen carcass around is aided by a cacophony of grunts and groans. I can hear that it's not pleasant, but it is completely involuntary. I could move without making noise, but the sheer concentration needed would take mental resources away from maintaining balance. All pride goes before falling over! I live just a few miles from Wimbledon, but the only advantage this usually gives me is the knowledge if it's raining here, it's about to rain there. As a tennis nut, I can then get on with something else rather than watch it on TV. Getting tickets, unless you're willing to camp out in a queue for days, is nigh impossible. That is, it was, until I entered the wheelchair tennis fraternity. Somehow, I ended up on a database that puts me in a regular ballot for tickets. Don't get to go every year, but, hey, that's a lot better than not going at all! And last week, I was fortunate to get Centre Court tickets. If it had rained, unlike the other courts, it has a sliding roof, so the tennis rolls on unabated. Instead, it was a blistering day. Luckily, the wheelchair section is right at the top. The view is still excellent, but we were sheltered from the sun by the court's permanent roof. Previously, I've been on No. 1 Court, where the wheelchair area is superb. But I'd have been in direct sunlight. Five hours of that and I'd have wilted like a vampire. The added bonus at Centre Court was a disabled toilet only a few yards away and a concessions area nearby. We could get as many Pimm's cocktails as we wanted without queuing and missing game after game. The downside is that you are now fully aware of the exorbitant cost of the things: 8.50 pounds a go! We sipped, rather than guzzled, our way through the afternoon. My carer for the day was Sean Meo, a comic with whom I've worked for some 20 years. He is the most enthusiastic tennis fan I know. He also is a fitness fanatic and correctly has a low opinion of sugar. So, yes, I had to get my own ice cream! It was cheering to be physically close enough to get to the concessions area so that I could. The real bonus came at the beginning of the day. To get into Centre Court with a wheelchair, we had to go via the players entrance. The guard on the door said we had to wait five minutes because an "old lady" was coming down in the lift. It was Thursday of the first week; it couldn't be the Queen. We were only feet away from the "old lady" when she emerged, and she's aged well. It was Roger Federer.
I’ve been considering writing about the fun, fun world of catheters. As this column is morphing into some…
So, I recently signed up to join a new and much closer exercise class. The previous drive of nearly…
It’s summer in the U.K., and it’s hot. That’s cause for celebration for everyone but us. It’s actually…
Back in the day, I always wanted to be a columnist. That day was so long ago it…
One of the most dispiriting aspects of a chronic illness is that it traps you in your own…
Read John Connor’s previous column, “Lemtrada I: This Island Couch.” Apologies for the pic of my edema–riddled right…
The latest drug media storm to erupt in Britain is “Spice,” which causes users to become living statues.
If I was writing fiction about two disabled people going on a road trip, I’d be pleased to…
It was three years since I’d seen my best mate Nigel. The last time had been when we said goodbye…
There are a few moments when life changes. In my day, it was meeting your partner across a…
These might be the days of the gig economy, but I’ve been doing one every Tuesday for 27 years.
In the summer of 2012 David Bowie’s song “Heroes” became the anthem of the London Olympics despite Bowie turning down…
It seems I’ve made it to my second weekly column. I was going to write about a non-MS physical impairment…
So, I’m lying on the floor taking in the stippled ceiling we’ve never changed in the past 19 years. My…
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