Columns

Ho-Ho-No

Even when a major holiday isnā€™t scheduled in a calendar month, Iā€™m a pretty busy lady. I work a full-time job that requires me to be present and ā€œonā€ most of every day. I also have to deal with Atlanta traffic, which is physically and mentally exhausting. Iā€™m a…

In Real Time

So, “it” started on Monday. I have no idea what I’m dealing with. Is it a urinary tract infection, a relapse, a bird, or a plane? The superhero metaphor is warranted because, just like in “Avengers: Infinity War,” there will be no resolution by the end. Hmm, I’ve…

My Lemtrada Journey: Round 2, Plus 7 Months

I’m coming up on the second anniversary of my Lemtrada (alemtuzumab) treatment. My first infusion round was the first week of DecemberĀ 2016. Round 2, delayed by four months, was done last April. So, it’s time to update my Lemtrada journey for you. Lemtrada, in case you’re not…

FDA Warns of Possible Dangers of Stopping Gilenya

If you are being treated with Gilenya, take note. The U.S. Food and Drug Administration is warning that if you stop using Gilenya (fingolimod), there’s a chance your MS could become worse. The FDA issued a safety alert saying that this only happens rarely, but when it does, the…

Facing the Reality of the Holiday Season

The holiday bustle has begun. As Thanksgiving approaches, I ponder the season and a lump forms in my throat. I am grateful to be here and for the blessings of family and friends. But my heart aches with grief for those loved ones who are no longer with me.

MS-related Vertigo: What Can You Do?

I’ve never liked carnival rides (except for roller coasters) because they make me dizzy. Walking sideways, feeling nauseous, and turning green is not my idea of a fun time! So, I go out of my way to avoid anything that can make my head spin. Yet, for some reason,…

And the Good News Is …

Getting started on any career is fraught with difficulty, and the trail that got me to my base camp was truly meandering. It was nearly as convoluted as that sentence! At 23, without meaning to, I found myself being a putative theater critic. Within months, under the pressure of…

When You’ve Gotta Go, but There’s No Place to Do It

We’ve all been there. That “uh-oh” feeling hits and you know you’ll be in trouble if you can’t find a restroom, fast. You hope the clerk in the store with the “Restrooms for Customers Only” sign will make an exception if you tell her it’s about to run down…

Rock Bottom: When Sitting Down Is a Pain in the Butt

ā€œThe reason you canā€™t keep your shorts up,ā€ the orthopedist said, ā€œis because you donā€™t have enough butt anymore.ā€ It was my first visit with this doctor, and I wasnā€™t quite sure what to expect. While waiting in a small, wood-paneled anteroom next…

Do Noise and Crowds Affect You More with MS?

Venturing into the world can be overwhelming with multiple sclerosis (MS). Crowds and noise can overload my compromised nervous system, and even my home sanctuary can induce stress when kids, animals, and electronics are present. While others simply hear kids playing or dogs barking, sound becomes shockingly…

MS, a Foot Brace, and a Car Crash

A tragic car crash involving a man with MS is a reminder that we all should be just a little bit more careful than the average driver when we get behind the wheel. The accident happened in early October on a street in Eugene, Oregon. As reported by…

Turning Information Overload into a Positive

Books. Magazines. Journals. Emails. Online articles. Newsletters. Podcasts. Local and cableĀ news. The quantity of information we take in daily is impressive ā€” overwhelming, even. According to a 2009 report from researchers at the University of California, San Diego, the average American consumed about 105,000 words per day, or…

How I Managed to Get a Scary Halloween Haircut

“You’ve had a haircut ā€” very smart!” was the greeting at work. Yes, but it was in no way a simple thing. The logistics involved were really that: It took the small army of my family to complete the mission. Until my last relapse six months ago, I could…

MS and the Flu Shot: What If You Don’t Want One?

I’ve written several times about MS and the flu. I’ve always encouraged people to get an annual flu shot, but I know some people, for whatever reasons, don’t get one. I know I’ll never convince some of you of the benefits of this shot, no matter how much…

Thinking About Selma Blair and Her MS

By now you may have heard that actress Selma Blair has revealed that she has multiple sclerosis (MS). That took a lot of guts. Those of us who share her diagnosis might learn a few things from what she’s shared and how she’s shared it. Blair may be…