I’m an old guy, and it’s been a looonnnggg time since I was diagnosed with multiple sclerosis. This, however, is not the case with BJ Baker. BJ is in his late 20s, and was having a very bad day. He was too tired to do a (seemingly) simple…
Coping methods
T.S. Eliot’s opens his masterwork The Waste Land with four stunning lines of verse: April is the cruellest month, breeding Lilacs out of the dead land, mixing Memory and desire, stirring Dull roots with spring rain. It seems odd to say that April is…
The dating process is the prerequisite to most serious relationships. We invest a significant amount of time to assess whether we are compatible with the person of interest. Dating should be fun and we should look forward to future possibilities. For the past few days I’ve been thinking about dating…
Editor’s note: Marking the second MS diagnosis anniversary of our columnists in one week, Judy Lynn writes about the “Anniversary Effect.” This week marks the 14th anniversary of my MS diagnosis. That day, March 27, 2003, is etched clearly in my mind. Ask me about anything else I was doing…
I am sure many of us have had instances where someone “offered” their advice on what is the best way to manage our illnesses. They are not medical professionals and many of them don’t suffer from the disease themselves. They present their beliefs as scientific dogma, often referring to…
On March 27, 2013, my primary care physician called me about MRI results from the day before. He and the radiologist concurred; they had found evidence of brain lesions consistent with multiple sclerosis. Following protocol, he sent me to the best specialist in Seattle to confirm diagnosis. His was a preliminary diagnosis. In the…
My last column “Serenity Now: Relaxation Techniques for MS, Part One” offered some quick and easy suggestions on how to relax in times of stress. This column is a continuation of that series. Movement, massage and applied pressure to the correct areas have many benefits. Massaging certain areas of…
Most of us have heard Rachel Platten’s Fight Song. It became an anthem for many people who struggle with illness and adversity. Fight Song has become one of my favorite odes. As a writer, I love to listen to the words of song lyrics. The music is…
Relaxation and serenity are both attainable with the correct calming techniques. When overwhelmed by stress, the skills that have been gained and practiced become second nature to be summoned as needed. The combination of stress and multiple sclerosis can wreak havoc in the body. It can lead to a…
MS and the Fear of Missing Out
A couple of weeks ago I had a curious encounter with the friend of a friend. I live in a small town. In some ways we’re all at least neighbors. Huddled in a small group at the local grocery store, we were chatting about our experiences with the…
We all know, because we have heard it so many times, that MS is not the same for everyone — that no two people have exactly the same combination of symptoms. That got me…
I believe myself to be a person with great self confidence. It was a long journey to arrive at this destination, but once I arrived I knew I was here. I realize that chronic illness doesn’t only affect us physically, it manifests in other ways, too. There are psychological,…
When people ask me what I love, I usually respond, “God, my family, and St. Louis Cardinals baseball … in that order.” Other than the Razorbacks, Arkansas (my home state) doesn’t have much in the way of athletic bragging rights. Both when I was a kid and now,…
Benefits of Music Therapy for MS
Music therapy has long been known for its healing powers — its use dates back to WWI, where it was used to help with the physical and emotional healing of the wounded. Music can also be of help to those of us with multiple sclerosis. An article from the…
One of the most troubling symptoms of multiple sclerosis, especially for those of us who are still working, is “brain fog” — not being able to concentrate … not feeling “sharp” when working on a task or solving problems. So I was interested to read about a new…
It was a trip, plain and simple, neither my leg giving way nor a fall. It was MS-related because it was directly caused by foot drop; the toe of my left shoe caught on the tiniest ridge at the bottom of…
Last updated April 26, 2023 A key test for identifying multiple sclerosis (MS) during diagnosis, or to confirm a relapse, is magnetic resonance imaging (MRI.) For those who’ve never had to undergo an MRI, the thought of having this test might be terrifying. Being encased in a magnetic…
Fatigue is the bane of my existence. Clutter qualifies as my lifestyle. If I can’t see something it may as well be lost. I spend about 50% of my day trying to find things I have put “someplace safe.” The other half I spend looking for something I just had…
What is Brain Fog?
Brain fog is one of the most common symptoms of many chronic illnesses, including lupus, multiple sclerosis and fibromyalgia. In this Mind Over Meniere’s video, Glenn describes how brain fog affects him on a daily basis. Discover some Pilates exercises suitable for multiple sclerosis patients. Brain fog is more…
Last week, I attended the Association of Writers & Writing Programs (AWP) conference in Washington, D.C. I had the opportunity to meet many fine folks who are hard at work creating everything from alphabet books for children to poetry protesting xenophobia. I attended panels on editing, writing…
When you live with multiple sclerosis, stress is unavoidable. Your first experience with the stress of MS is when you’re diagnosed. As you move forward, you begin experiencing not only “normal” stress, but also the stress of living with a chronic illness. Stress…
Stress is like a light that turns on when you need it. But when you can’t turn it off, you run the risk of burnout, which can impact your health, according to the U.S. National MS Society. I often have said that I…
Americans are feeling more anxious than ever. It’s not politics as usual, but politics as unusual. People who never were politically active find themselves raising their voices to make a difference. In the MS community, raising our voices is not something new.
The three words are powerful. My mother speaks them into my spirit frequently. She tells me to “Just hold on.” My mother is a woman who has withstood many tragedies. Both my parents have. They’ve lost their children, cared for me as an ill child and they continue to…
January 2017 has proven to be a bit of a cluster, if you know what I mean. Holiday recovery, out-of-town trips for work, budget cuts, extreme weather and, of course, the social and political “chaos climate” all conspired to make me itchy, twitchy and tense! This past Thursday, as…
Recent weeks have been filled with enough political drama to last a lifetime. Wherever I go virtually (and now, even in “real life”), ideological division has been amplified to the extreme. Except … when I go to the multiple sclerosis online forum I co-administrate. Meet the people in my neighborhood The…
The common cold is upon me as I sit here laboring to breathe, with water-soaked eyes and a rumbling cough. I am under attack, an enemy has infiltrated my multiple sclerosis-weakened immune system. The antagonists have found a warm home and they are fighting to stay. It is…
“Laughter is the best medicine.” We may never know where this quote originated, but it’s a good one. The benefits of a loud, robust belly laugh are many! According to many internet sites laughter has great short-term effects. When you laugh, it doesn’t just lift you mentally, it…
Have you ever had someone tell you “it could be worse?” They are making a valiant effort to comfort and console you. However, there is not much consolation in the words. They almost sound a bit insensitive. I have been told this several times. I think many people…
There’s one thing you need to know about my family — we’re weird. We laugh at inopportune times. We can go entire days just speaking to one another in movie quotes. Sarcasm is a love language to my clan. And we can make just about anything — and I…