living with MS

When people ask me what I love, I usually respond, “God, my family, and St. Louis Cardinals baseball … in that order.” Other than the Razorbacks, Arkansas (my home state) doesn’t have much in the way of athletic bragging rights. Both when I was a kid and now,…

You probably talk about multiple sclerosis (MS) symptoms, drugs and therapies when you meet with your neurologist, but I’ll bet that most people don’t talk very much about working. Being able to work, and continuing to hold down a job, is important. I see concerns about this all…

A number of multiple sclerosis organizations have joined Biogen in the second year of the #MySupportHero initiative. The social media campaign is a way for people with multiple sclerosis (MS)  to thank those who give them the care,  encouragement, attention, and strength they need. The initiative runs through the end of March, which…

I was in Washington, D.C. for a meeting, and had the opportunity to dine with some fellow multiple sclerosis advocates. I thought it might be of interest to get their take on the most pressing issues of 2017 for people living with MS. I wasn’t sure what to…

On a Monday in July, the Multiple Sclerosis Association of America (MSAA) gave Kathy, who loves to hike in the woods, a cooling vest that reduces heat stress — a common issue for people with multiple sclerosis (MS). On a Wednesday in October, the nonprofit funded an MRI for Sarah,…

My coming trip to Spain has me in research mode. After making a list of my travel questions last week, I decided to obtain the answers to just a few each week. Baby steps for this novice planner. Before I decide whether to take my AFO, cooling vest, trekking…

I’ve spent a lot of time lately around people following special diets. They’re either voluntarily cutting carbs, counting calories, following a diet plan, or fasting, but not because they have a medical condition. Mostly they diet to feel better, lose some weight, or reset their metabolism. I wish them well, even as…

March is recognized by the Multiple Sclerosis Association of America as MS Awareness Month. Awareness is a vital component of any illness. We must actively engage to collectively congregate and support the cause by way of our time, resources and voices. We are seeking to make communities aware of…

Music therapy has long been known for its healing powers — its use dates back to WWI, where it was used to help with the physical and emotional healing of the wounded. Music can also be of help to those of us with multiple sclerosis. An article from the…

One of the most troubling symptoms of multiple sclerosis, especially for those of us who are still working, is “brain fog” — not being able to concentrate … not feeling “sharp” when working on a task or solving problems. So I was interested to read about a new…

It was a trip, plain and simple, neither my leg giving way nor a fall. It was MS-related because it was directly caused by foot drop; the toe of my left shoe caught on the tiniest ridge at the bottom of…

The Brazilian government has authorized HempMeds Brasil, a unit of California-based Medical Marijuana, to import the parent company’s hemp cannabidiol (CBD) oil flagship product — known as Real Scientific Hemp Oil (RSHO) — for the management of multiple sclerosis (MS) symptoms. This is the first time Brazil’s National Health Surveillance Agency…

In my younger years, I took great pride in my far-flung spontaneity, and unfairly judged those I perceived to be too thoughtful and prudent. Age, with its attendant wisdom and experience, moved me slightly inland. In 2003, MS arrived with a smart little bag full of practical necessities,…

Fatigue is the bane of my existence. Clutter qualifies as my lifestyle. If I can’t see something it may as well be lost. I spend about 50% of my day trying to find things I have put “someplace safe.” The other half I spend looking for something I just had…

It’s a question that nearly every MS patient faces. When do I tell my children about my multiple sclerosis, and what’s the best way to do it? In early January I wrote a column about sharing an MS diagnosis. It was prompted by a reader who had told…

Brain fog is one of the most common symptoms of many chronic illnesses, including lupus, multiple sclerosis and fibromyalgia. In this Mind Over Meniere’s video, Glenn describes how brain fog affects him on a daily basis. Discover some Pilates exercises suitable for multiple sclerosis patients.  Brain fog is more…

Does your MS fatigue and energy need a boost? I know mine does; having multiple sclerosis drains my battery very quickly. Add to that a terrible cold I had recently, and my fatigue has doubled, and my energy has left the building! While looking for a magic…

Here`s my Pick of the Week’s News as published by Multiple Sclerosis News Today. Fitness Trainer and MS Patient, Dolly Stokes, Launches BFitLifestyles Website with Husband Looking after what you eat and exercising according to your abilities apparently can help alleviate symptoms of many chronic illnesses including…

Last week, I attended the Association of Writers & Writing Programs (AWP) conference in Washington, D.C. I had the opportunity to meet many fine folks who are hard at work creating everything from alphabet books for children to poetry protesting xenophobia. I attended panels on editing, writing…

A lot of factors go into our decisions when we select the drug we’re going to use to fight our multiple sclerosis. How well will it work? What are the possible side effects and how serious could they be? How will using the drug (taking a pill, giving myself a…

Dolly Stokes, a fitness trainer and multiple sclerosis (MS) patient, and her husband, Jeff Stokes, have launched the website for their fitness and wellness company, BFitLifestyles, providing information on how to live an active and healthy life. The Stokes, owners of three fitness-related companies in Fairhope, Alabama – DollyBFitness, BFitLifestyles, and Stokes…

Thoughts of love were brought to the forefront of many people’s minds on Valentine’s Day, which is widely celebrated by couples both young and not so young. They usually buy cards and enjoy romantic dinners. In our…

When it comes to multiple sclerosis, mastering your own understanding of the disease means you need to mind your Ps, Qs, dot your Is, cross your Ts, and recite your ABCs. There is so much to know about this complex disease. But the more you know as a…

When you live with multiple sclerosis, stress is unavoidable. Your first experience with the stress of MS is when you’re diagnosed. As you move forward, you begin experiencing not only “normal” stress, but also the stress of living with a chronic illness.   Stress…

What do pot brownies, shoe shopping and bladder control have in common? These are just a few of the varied MS self-help support group discussion topics in which I have enjoyed participating. I have been an attendee and group leader of two National MS Society self-help groups. I also…

There is some good news about stem cell therapy. A just-published study concludes that one form of human stem cell therapy is more effective at treating multiple sclerosis than the best of the MS medications being used currently. The not-so-good news is that approval of this…

For many years I have been fighting the battle of the bulge while trying to decipher and combat many food intolerances. Every year I seem to come up short in the battle with losing weight, but I continue to try to shed the pounds. There are many challenges…

Here’s my Pick of the Week’s News as published in Multiple Sclerosis News Today. People with Chronic Diseases Support Obamacare More Than General Public, Survey Finds As everyone must know, throughout the world, politics in the U.S. has become extremely volatile and one of the focuses is…

A new online resource, LiveWiseMS.org, aims to raise awareness about multiple sclerosis (MS) and provide patients and caregivers information about the disease’s symptoms and conditions. The platform, developed by the International Organization of Multiple Sclerosis Nurses (IOMSN), hopes to promote healthy living and improve quality of life for MS patients and their families.

Browsing through some multiple sclerosis Facebook groups the other day I was reminded of the line from the 1967 movie Cool Hand Luke: “What we have here is a failure to communicate.” These posts jumped out at me: So when my neuro says he wants me to…