Owning a dog, cat or other household pet during the ongoing COVID-19 pandemic has helped multiple sclerosis (MS) patients gain a better overall sense of their health and well-being, a single-site survey by mail of people in the U.K. reported. But pet-owning patients reported no significant improvements in their…
relationships
I’ve been meaning to do this for a while. My wife, Jane, who’s also my primary MS carer, went away for a few days last week, and with absence making the heart grow fonder and all that, I thought I’d strike — if she came back! Fortunately, she did,…
I thought I finally had this bladder thing licked. After years of urinary urgency and frequency, I’d been doing much better. I was sleeping at least seven hours a night without having to go to the bathroom, and bathroom trips were less frequent in the daytime, too. When traveling…
Well, there’s a new carer at home, actually, but town sounds so much cooler. Like an old-time Western sheriff! My dear wife, Jane, has taken a few days off to attend an ayurvedic yoga retreat, so I’m without the care of She Who Really Must Be Obeyed. (I’ve…
People with multiple sclerosis (MS) have more difficulty recognizing emotions in others, and they experience emotions more intensely than healthy people, a small study found. The study, “Emotional experience is increased and emotion recognition decreased in multiple sclerosis,” was published in Scientific Reports. Emotions are essential for…
“Rock bottom is the end of what wasn’t true enough. Begin again and build something Truer.” — Glennon Doyle The first of our four pregnancy losses were our twin daughters in 2013, which happened nearly halfway through my pregnancy. Three years later, the first symptoms appeared that would eventually would…
In this installment of our “Expert Voices” series, Multiple Sclerosis News Today asked psychologist Gayle Lewis, PhD, to answer some of your questions related to sex and intimacy for people with multiple sclerosis (MS) and their partners. Gayle Lewis is a psychologist and psychoanalyst currently in private practice in New…
I want to help in any way I possibly can. My lonely confusion in the early days after being diagnosed with aggressive relapsing-remitting multiple sclerosis was mentally and physically paralyzing. However, this column isn’t about how “Hurricane MS” battered my body. Instead, it’s about why I chose to…
It is hard to watch the decline in real time. It happens before my very eyes. Like “Groundhog Day,” I wake, I try, and I do. I persevere because that is who I am. I push past the chaos in my body. I don’t see every new pain as…
A new podcast series hosted and produced by cultural expert Jess Weiner aims to help girls, non-binary individuals, and women, with their confidence. The target audience includes those with physical disorders, such as multiple sclerosis (MS), that may affect their self-image. Called “Dominant Stories with Jess Weiner,” the 12-episode…
Well, that was fun. I’ve got my party hat on from a recent birthday (of course I have one, it’s my trusty trilby! See my avatar above) and have been out and about having a lot of fun. I splurged by spending time with family and friends, ’cause…
It was my birthday last Friday. No cards, please; it’s far too late. Anyway, considering the world’s supply chain disruption, I’d be well on the way to my next by the time it arrived! Just a small social gathering of immediate family. Six of us demolished 150 quids’ —…
As the music started, the crowd stood and cheered. I followed suit. Well, almost. I stood with more intention than balance. And as I did, I veered toward the person seated in the next row. Hello, secondary progressive MS. Two years ago, I went to see Paul McCartney at Dodger…
Editor’s note: The Multiple Sclerosis News Today team is providing in-depth coverage of the virtual 37th Congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS), Oct. 13–15. Go here to see the latest stories from the conference.
I know that here in England, COVID-19 restrictions have been lifted for about two months. But trepidation has now been instilled in me. It doesn’t help that the vast number of people catching the virus are still a daily news item, nearly two years after the start of the…
“Hurricane MS,” which is how I refer to the aggressive nature of my MS progression, happened quickly and mercilessly. I am aware that my case is particularly unusual, given how aggressive its onset was. This is one of the reasons I feel a sense of purpose in sharing my story…
So, yes, I’ve been away for four weeks. Anybody miss me? Well not away as such. There are places with hoists — even a specialist camper van you can hire here in the United Kingdom — but matching that with a profiling bed makes for quite the elusive Venn…
Visits to the hospital related to multiple sclerosis (MS) are more common when it’s hot or when temperatures are more variable, but less likely to be needed when it’s humid, a new analysis suggests. The results were published in the International Journal of Environmental Research and Public Health, in…
MS Australia is again teaming up with Jean Hailes‘ Women’s Health Week, to promote good health for all women and girls and to support the multiple sclerosis (MS) community. About three times more women than men are affected by MS. “We are pleased to again be partnering…
Meeting people and dating is challenging for people with multiple sclerosis (MS), but the experience of dating is highly personal and influenced by past experiences and beliefs, a small study reveals. The study, “Dating with a Diagnosis: The Lived Experience of People with Multiple Sclerosis,” was published in…
More than half of people with multiple sclerosis (MS) who require an informal caregiver have experienced abuse or mistreatment by that caregiver, according to a study conducted in California. The study, “Validity and Reliability of the Scale to Report Emotional Stress Signs–Multiple Sclerosis (STRESS-MS) in Assessing…
This week, my sons returned to school. Both are now in middle school, and let me tell you, this freaks me out deeply as a mother. When we adopted them, the younger boy was only beginning kindergarten, and today, I sent him into the unknown hallways of sixth grade. (Granted,…
Getting Something Off My Chest
May I vent, please? In the five years that I’ve been writing this column, I don’t think I’ve ever used it to get something off my chest. But I need to today. It’s about an experience I had at a restaurant the other night. My wife and I went…
It’s with a heavy heart that I write this. I don’t want to, but I have to do what’s right. This will be my last column. Lately, things have been crazy busy for me, with a mix of expected events, such as moving to a new home, and a few unexpected…
“Change is the only constant in life,” a quote paraphrased from Greek philosopher Heraclitus states. This ancient wisdom still prevails today. Life is in a constant flux. We evolve, we grow, and we shift, and we are never the same. When I suffer, I cling to this knowledge. And…
“Look on the bright side.” Someone just said this to me days ago regarding the loss of a very dear friend. The bright side? I demanded to know what the bright side of this situation could be. There was no satiable explanation given in that moment. I am also…
My obsession with numbers has continued since my latest MS relapses, but now I’ve taken it to a whole new level. A few months ago, I explained in a column that my husband had filled our house with clocks after reading “Atomic Habits” by James Clear, which…
A numb, weak leg. Yay. Another thing to add to the list of crappy challenges I’ve had to face this year. If you ask me, it’s all been a bit too much, and I’d like to get off this ride and get my money back, please. I recently rang my…
In an effort to make sure those with spinal cord injuries and disorders (SCI/D) are included in disability legislation, the United Spinal Association and some 200 advocates recently gathered virtually for this year’s “Roll on Capitol Hill.” The annual event, in which advocates met with lawmakers, gives organization members…
Happy anniversary to us! My wife, Laura, and I are celebrating our 45th wedding anniversary this month. It’s hard to believe, especially because the divorce rate for someone with multiple sclerosis is higher than it is for a healthy couple. A review of records in the Danish MS-Registry a…