Still Waiting on Ocrevus
Several months ago I wrote a blog on my personal website about Ocrevus (ocrelizumab), the first drug that’s designed…
People say to write what you know and Ed Tobias knows about MS. He's lived with the illness since 1980, when he was 32 years old. Ed's a retired, award-winning broadcast journalist and his column combines his four decades of MS experiences with news and comments about the latest in the MS community. In addition to writing his column, Ed is one of the patient moderators on the MS News Today Facebook, Twitter, and Instagram sites. He’s also the author of “The Multiple Sclerosis Toolbox: Hints and Tips for Living with M.S.” Ed and his wife split their time between the Washington, D.C. suburbs and Florida’s Gulf Coast, trying to follow the sun.
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Several months ago I wrote a blog on my personal website about Ocrevus (ocrelizumab), the first drug that’s designed…
When I was a child my teeth had a lot of cavities So, I had lots of fillings in my…
I don’t want to write about Andrew Barclay. But I have to. Because Andrew Barclay could be you or…
I’ll admit I was nervous as I sat in the infusion chair for Day 1 of Round 1 of…
Have you ever wondered how your MS experience compares with others? Your ability to go out and do things?…
Here we go. This is the week my Lemtrada (alemtuzumab) infusions begin. A few weeks ago I wrote…
I’m 68 years old. I’ve had multiple sclerosis since I was 32. I’m not sure where I expected this…
I love it when the sun is shining. I spend a lot of time outdoors in the summer, despite…
You know the saying about having too much of a good thing? I think that’s me, right now, as…
My column, earlier this week, about traveling with a scooter, generated a couple of questions. What do you ride?…
“Round, round, get around. I get around.” I was humming that classic 1960s Beach Boys tune this morning (yes,…
Dear Lauren Parrott, I know you’re scared. The fears that you shared in your video blog ring true to…
I thought I’d finish writing this last night, but I was too tired. Same thing the night before, and…
“… in 3 years we went from living decent not rich to poverty and will prob have no utilities…
I’m not asking for your money. (At least not yet.) But I’ve recently seen a lot of news stories…
It’s happened to us all. You arrive at a business and discover there are steps at the entrance. A…
One of the MS blogs that I follow is written by Jen, who lives in England. It’s called Tripping…
Most of us who live with multiple sclerosis also live with a disease modifying therapy (DMT) — a drug…
My neurologist calls Lemtrada “HSCT lite.” She says that not only is the drug able to reduce exacerbations and…
I made a trip to the dentist today. What does that have to do with multiple sclerosis, you ask?…
I’m filling in for Ian Franks this week on news item picks for Multiple Sclerosis News Today while Ian is in…
Osteoporosis (fragile bones) is only a women’s problem, right? Wrong, especially if you have multiple sclerosis — as I’ve…
Have you tried Pilates to improve your mobility? When my wife and I tried it, a few years ago,…
It’s that time of the year. Drug insurance companies in the U.S. are making changes to their formularies —…
What should be done about stem cell treatments? Are stem cells safe? Do they work? Do stem cell clinics…
I hate to admit it, but I’m getting kind of old. That’s not to say that 68 is really…
You don’t see people with disabilities very often in television ads. And when you do, the person with the handicap…
A post on another website, asking about whether it was wise for someone with Multiple Sclerosis to receive the…
Tripping, falling and bloody knees. Been there. Done that. (Who with MS hasn’t)? But this wasn’t me. This was…
Anyone with a chronic medical problem knows how expensive drugs can be, and how a drug that you need…
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