I was throwing the ball for my golden retriever when it bounced onto an unreachable ledge. I watched her become antsy for a ball she could see but not reach and wondered what she would do. Her frustration gave way to a solution as she jumped from…
Coping methods
Earworms and Multiple Sclerosis
Sometimes they are called “sticky songs,” better known by their common name “earworms.” Earworms are those musical phrases that get stuck in our head that we hear over and over. It’s much like those worms underground that burrow and twist and turn, constantly finding new territory to inhabit.
Living Just for Today
Last week, I wrote about the incessant emotions of MS and chronic illness. This week, I will focus on living in the present moment. Remaining on a quest to continue the depiction of real life with MS for Multiple Sclerosis Awareness Month 2018, this week’s column will…
Emotions Run High
I am a sensitive individual by nature. Good, bad, or insignificant, that is part of my genetic makeup. I cry when the dog gets hurt in the movie, at every episode of “This Is Us,” and every time I hear “O Holy Night” at Christmas Eve services. While sometimes endearing,…
“What is wrong with you?” I have been asked this question numerous times by significant people in my life. The most recent was a few days ago. The question usually occurs during the times I have an emotional “meltdown.” Whenever I hear it, I get defensive, thinking that I…
I have been contemplative these last few days, lost in thought regarding the state of the MS. I am not sad or upset, simply in observation mode. Reaching for what may have precipitated this gentle melancholy, I realize I am on the precipice of my 49th year. While MS continues…
It’s frightening to feel sick most of the time. Frightening, scary, overwhelming, unnerving, and hellish. Whichever negative words you choose are the right ones to describe how it feels to live with MS. People with MS are snowflakes, and our emotions are quite often the same. After three-plus…
The Sun Shall Rise
I had the flu for several days, and it was disastrous. So, I did not write last week. I hope you missed the column as much as I missed writing it and hearing from you. Several of my friends have the flu as well. This is an awful…
15 Multiple Sclerosis-Inspired Tattoos
Getting a tattoo shouldn’t be taken lightly. It’s a piece of art that will be on your body for life and therefore, should represent something that’s near and dear to your heart. With that in mind, it’s no surprise that many who suffer from a chronic illness choose to add permanent messages…
The Power of Resilience
After taking a tumble this week, I am reminded of the power of resilience. Dictionary.com defines resilience as: “1. the power or ability to return to the original form, position, etc., after being bent, compressed, or stretched; elasticity. 2. ability to recover readily from illness, depression, adversity,…
At the end of each passing year, I like to give a theme name to the fresh new year. So last year when my sister Kathy asked me what I would dub 2018, I thought for a few moments and said, “The metamorphosis of change.” I previously didn’t have…
Last updated April 25, 2023 At the intersection of hope and despair is a bench to sit and rest. At least, I hope there is. The bench gives us an opportunity to take a breather from the stresses of the world. It’s a chance to sit and think about which…
Who decides how we choose to chronicle our journey of illness? I have thought about this for the past few days. Many people believe that sharing the negative aspects of illness exacerbates fear and pessimism. The mindset is that if our words are inconsistent with hope and optimism, we…
I’m currently working on an essay about the power of silence. And, in the process of planning this thing, I realized I don’t do so well with it — especially at night. So, to work my way through this topic, I began looking for ways to experience true silence.
Navigating Relationships with MS
Relationships are work. When you add in a chronic, progressive disease, the work becomes exponential. This is not to say work is a bad thing, as we reap immense rewards when we put effort into anything. Rather, anything worth doing…
Nothing resets your thinking like bouncing your head off a hardwood floor. At least, for me. It was about 10 p.m. on a Saturday night, and we were shutting down the house. That routine consists of turning lights off, locking doors, and plugging in phones and…
Since the onset of my MS, I have been acutely aware that stress and anxiety can wreak havoc on my body. Being anxious is not a comfortable feeling, whether you have a chronic illness or not. This past weekend was my husband’s celebration of life service. With his…
Coming out of the Cog Fog
I am watching the computer curser taunt my inability to collect my thoughts. Three days out of chemotherapy, my brain is more fried than usual, the fog thick and dense. For those unfamiliar with cog fog (cognitive fog), it is a clouding…
We endured another devastating loss this week. My beloved sister-in-law, a cancer survivor whom I affectionately called sister, passed away. Although we knew her disease was terminal, she passed away unexpectedly in her sleep. Death is never easy, and no matter how much we try, we cannot entirely prepare…
Chicken Soup Has Super Powers
Get plenty of rest. Drink lots of warm fluids. Use a humidifier. Gargle and flush your sinuses with warm salt water. Blow your nose early and often. Take over-the-counter medications. Eat some chicken soup. No doubt, you know what I’m talking about when you read this list of…
Grieving the Loss of a Loved One
One year ago, I wrote “Grief, Self-preservation and Multiple Sclerosis.” My…
“It’s a new dawn, it’s a new day and I’m feeling good.” As I am writing my column this song is playing in my head. I enjoy listening to Nina Simone because her voice is distinctive and telling. Her songs chant her feelings of despair and…
We Are Streams that Sing
Wendell Berry, a novelist, poet, farmer and environmental activist, has written a number of superb books. Don’t believe me? Go read “Jayber Crow” and shoot me a message. I would love to discuss it with someone again! As a person who happens to have multiple sclerosis, I…
There ‘s a top 10 list of New Year’s resolutions that are most commonly made and then most commonly broken. Lose weight, get fit, stop smoking (well, never touch hard drugs like tobacco), and spend more time with the family (they have no choice unless they leave…
In last week’s column, I shared what I called my ABCs of gratitude. In the past few days, I’ve had to revisit my list several times. This was a distressing week. Even more perplexing is my inability to determine the exact cause of my anguish. I could not…
Gratitude is defined as the quality of being thankful; a readiness to show appreciation for and to return kindness. By definition, we can infer that, in addition to it being a quality, it is also an act. Gratitude is not an exact science, it takes practice, development, participation and…
The Christmas season is upon us — decorations, shopping, and get-togethers dominate the month of December. If you tune into the Hallmark channel you will see this season as synonymous with love, laughter, and an abundance of cheer. With joy the prevailing theme it can be difficult to experience…
Whenever I turn the pages of my wall calendar to December, I look at the word itself ― DECEMBER ― and my heart fills with joy. And admittedly a little dread. Joy, because my husband and son have birthdays a week apart, it’s…
Holding ‘Space’ for Others
When a friend or loved one is going through a tough time, it’s hard to know how best to help. Do you help carry the burden? Would it be better to offer support from a distance and give the person space? Life can be hard and awkward and…
I find it incredibly ironic that the day after we pause to give thanks for whom and for what we have, we are breaking down doors and fighting one another in the name of Black Friday. While easy to proclaim in the fervency of the season among family…