Columns

So, “it” started on Monday. I have no idea what I’m dealing with. Is it a urinary tract infection, a relapse, a bird, or a plane? The superhero metaphor is warranted because, just like in “Avengers: Infinity War,” there will be no resolution by the end. Hmm, I’ve…

I’m coming up on the second anniversary of my Lemtrada (alemtuzumab) treatment. My first infusion round was the first week of December 2016. Round 2, delayed by four months, was done last April. So, it’s time to update my Lemtrada journey for you. Lemtrada, in case you’re not…

I am excited and thankful to share with you a new collaboration between iConquerMS and the National Multiple Sclerosis Society (NMSS). For several years, I have worked with the people at the Accelerated Cure Project (ACP), a nonprofit organization that is the overseeing body for iConquerMS, to…

If you are being treated with Gilenya, take note. The U.S. Food and Drug Administration is warning that if you stop using Gilenya (fingolimod), there’s a chance your MS could become worse. The FDA issued a safety alert saying that this only happens rarely, but when it does, the…

We live in a turbulent, violent, and hostile society. We wake up every day to news of another mass shooting, Mother Nature causing unstoppable damage, loud protests by politicians or citizens, or an exchange of angry barbs across social media.   Bad news…

The holiday bustle has begun. As Thanksgiving approaches, I ponder the season and a lump forms in my throat. I am grateful to be here and for the blessings of family and friends. But my heart aches with grief for those loved ones who are no longer with me.

We all know how expensive health insurance can be. On the social media sites that I browse, I always see stories of people with MS who find themselves in a bind due to the healthcare system in the U.S. Some can’t work because their MS has robbed them of…

I’ve never liked carnival rides (except for roller coasters) because they make me dizzy. Walking sideways, feeling nauseous, and turning green is not my idea of a fun time! So, I go out of my way to avoid anything that can make my head spin. Yet, for some reason,…

MS-specific Lineage of Oligodendrocytes May Provide New Hints on MS Development Our immune system, according to this study, may not be the only thing playing a role in the development of our MS. The same cells that produce the myelin that coats our nerves may also be…

Like many comic book geeks, I’ve been sitting shiva for the last few days, mourning the passing of Stan Lee. I never met the man in person, but I know many people who have. They said he was warm, open, and enthusiastic. He was a passionate and tireless creator…

Getting started on any career is fraught with difficulty, and the trail that got me to my base camp was truly meandering. It was nearly as convoluted as that sentence! At 23, without meaning to, I found myself being a putative theater critic. Within months, under the pressure of…

We’ve all been there. That “uh-oh” feeling hits and you know you’ll be in trouble if you can’t find a restroom, fast. You hope the clerk in the store with the “Restrooms for Customers Only” sign will make an exception if you tell her it’s about to run down…

I have always prided myself on my smarts. I excelled in college, where I realized my love for learning. I enjoy conversing with others, and I make a concerted effort to expand my horizons. I have never shied away from an opportunity to make another’s acquaintance. Be it current…

“The reason you can’t keep your shorts up,” the orthopedist said, “is because you don’t have enough butt anymore.” It was my first visit with this doctor, and I wasn’t quite sure what to expect. While waiting in a small, wood-paneled anteroom next…

I’m writing again about someone with MS who was blocked from a handicapped parking spot by someone who isn’t handicapped. I know, it happens all the time. But this time was a little different. The spot was blocked by a television news crew. And that struck a nerve…

Venturing into the world can be overwhelming with multiple sclerosis (MS). Crowds and noise can overload my compromised nervous system, and even my home sanctuary can induce stress when kids, animals, and electronics are present. While others simply hear kids playing or dogs barking, sound becomes shockingly…

Exercise Program Based on Ballet Improves Motor Control and Balance in MS Patients, Study Reports It makes sense. Yoga helps multiple sclerosis (MS) symptoms, as do Pilates and simple stretching. So why shouldn’t ballet? After all, it requires similar balance and motor control. This study only involved…

As I’m writing this, my right arm is tight and my right hand is cramped up. I was out working last night and night work always shatters me the next morning when I awaken with exacerbated MS symptoms. Luckily, I never learned to be a copy typist when I…

A tragic car crash involving a man with MS is a reminder that we all should be just a little bit more careful than the average driver when we get behind the wheel. The accident happened in early October on a street in Eugene, Oregon. As reported by…

Fall is my favorite season. I love the change in temperature, the falling of amber leaves, trading flip-flops for loafers, the din of football games, and the joy of the holiday season. There is so much to enjoy, yet this particular Sunday I am sick. I have acquired the…

Life. It’s fragile, fleeting, beautiful, and heartbreaking. It is the most precious gift we have. Approximately one month ago, the senior columns editor for Bionews Services received her wings. Her name was Serena. Ironically, I never met Serena. We communicated only online. As I think about my journey thus…

MS medications are expensive in the United States. We all know that. We also know that some of those expensive meds are a lot less expensive in places like Canada and Mexico. Now comes a novel idea from the nonprofit health insurance provider PEHP, which covers state workers and…

NICE Postpones Final Opinion on Adding Ocrevus to Public Health System for PPMS Patients in UK This last-minute reprieve from the agency that dictates which medications may be prescribed for patients of the U.K.’s National Health Service (NHS) is welcome news. Last summer, the National Institute for…

Books. Magazines. Journals. Emails. Online articles. Newsletters. Podcasts. Local and cable news. The quantity of information we take in daily is impressive — overwhelming, even. According to a 2009 report from researchers at the University of California, San Diego, the average American consumed about 105,000 words per day, or…

“You’ve had a haircut — very smart!” was the greeting at work. Yes, but it was in no way a simple thing. The logistics involved were really that: It took the small army of my family to complete the mission. Until my last relapse six months ago, I could…

I’ve written several times about MS and the flu. I’ve always encouraged people to get an annual flu shot, but I know some people, for whatever reasons, don’t get one. I know I’ll never convince some of you of the benefits of this shot, no matter how much…

Have you ever seen an iceberg? The prism of packed ice illuminates the surrounding sea. The part you can see is beautiful, yet most of its mass lies beneath the surface. You cannot know what you cannot see. Therefore, your perception is based on what is visible. What…

By now you may have heard that actress Selma Blair has revealed that she has multiple sclerosis (MS). That took a lot of guts. Those of us who share her diagnosis might learn a few things from what she’s shared and how she’s shared it. Blair may be…

Stanford Researchers Open Medical Cannabis Company with Oral Therapy for MS Pain, Spasticity as Initial Goal Let’s be clear up front. There’s no indication that you’ll be able to buy a cannabis pill from this company anytime soon — or ever. The company’s website says that testing…

Each morning, I’m confronted by an adaptation of the conundrum faced by Forest Gump’s mother: “Life [is] like a box of chocolates: You never know what you’re gonna get.” If I can’t get myself out of bed, it’s going to be a bad one. I may be in…