Columns

Though my first brush with MS came in 2000 or so, I wasn’t diagnosed until December 2013 with primary progressive MS. Shortly after the diagnosis, I began scouring the internet for information about the disease and how to live with it. Sound familiar? I found…

Religion and spirituality are personal, delicate issues for many. Various schools of thought exist, and I haven’t the desire or the ability to deem one more important than the other. Writing about religious and spiritual matters is at times taboo in an often secular world. I can, however,…

During a routine exam with my neurologist recently, I asked her a question I’d never thought to ask before: “Why do you order regular MRIs of my brain, but not of my spine?” Interestingly, within a few days of my exam, a Harvard Med School study was…

In case you missed them, here are some news stories that appeared in MS News Today that caught my eye over the past week. **** Harvard Study Finds No Link Between Clinical Exams and MRIs in Some MS Patients I’m really not surprised…

It’s summer in the U.K., and it’s hot. That’s cause for celebration for everyone but us. It’s actually the hottest June day since 1986. Heat immediately spikes my fatigue. For some of us, the cold does the same. Thankfully, not me — I get the winter off. According…

Several months ago, I wrote a column about Andrew Barclay. Barclay died in an assisted suicide in December. He’d had multiple sclerosis for many years. Colin Campbell is a 56-year-old MS patient who lives in Inverness, Scotland. He also wanted to die. In fact, he was scheduled…

(Editor’s note: Tamara Sellman continues her occasional series on the MS alphabet with this second of two parts on terms starting with the letter “E.” Read the first part here.) When it comes to multiple sclerosis, mastering an understanding of the disease means you…

Many years ago, not long after my MS diagnosis, my cousin gave me a “gratitude journal.” At that time, I was all too aware of what I was not grateful for. The thought of giving thanks was daunting. But the journal suggested writing down just three things a…

Earlier this year, I visited a physical therapist I’d seen way back in my running days to devise a home workout routine that could help me address not only foot drop-related issues, but also a routine I’d actually do. One of the challenges I have with PT is doing…

Catheterization training in the hospital did not prepare me for how to manage on a daily basis. In my last column, I described how I ended up in the hospital unable to urinate at all. In this column, I will cover more details about what I learned along…

Once again, over the past couple of weeks, we’ve been blasted with headlines trumpeting a new MS discovery. Last month there were headlines about an inexpensive acne drug that supposedly could be used to reduce the symptoms of early MS. This month it’s headlines about a “cure”…

Many of the symptoms of multiple sclerosis feel random, and can be down right terrifying. I’ve recently been suffering from a scary MS symptom: slurred speech, also known as dysarthria. I open my mouth expecting the words I have chosen to appear. Instead, I slur and stutter…

In case you missed them, here are some news stories that appeared in MS News Today that caught my eye over the past week. **** Air Pollution May Trigger Relapses in MS Patients, French Study Finds Attention if you live in location where the air…

Like millions of other fans, I happily plunked down $13 to launch “Wonder Woman” into blockbuster status on its opening weekend. In fact, I was so excited that I purchased dress-up kits for my gal pal, Amy, and me. Yes, as 40-somethings, we attended a film resplendent…

Back in the day, I always wanted to be a columnist. That day was so long ago it was before sunrise. In my youthful naivety, I never thought about generating an idea a week. I also never considered it would be about my travails with an illness. Still,…

I was in Boston last week at the headquarters of Sanofi Genzyme. Yes, the big drug company. They brought together several people they consider to be “digital influencers” to pick their brains about what’s on the minds of people like you, who read what we write. Sanofi…

Editor’s note: Patient columnist Laura Kolaczkowski attended the 31st annual Consortium of Multiple Sclerosis Centers conference in New Orleans. We’re facing a major problem in the near future due to a shortage of researchers for multiple sclerosis, according to Jerry Wolinsky, MD, Bartels Family and Opal…

I just spent a week in Boston at an industry conference. I realized I’ve mastered the art of preparing for long-distance excursions since my last flare-up four years ago. Business trips used to be so intimidating to me. Now, I’m much better at packing,…

At times it can be difficult to know whether the cognitive issues I experience are the result of aging or multiple sclerosis. According to The National Multiple Sclerosis Society (NMSS) more than half of those living with MS develop problems with cognition, and in some cases…

Fatigue is a topic I have not wanted to write about. It’s not because the subject isn’t important. As I hemmed and hawed about this week’s column topic, fading in and out of an annoying cognitive fog brought on by increased MS fatigue, the task-minded side of me…

Note to readers: This is the last of a three-part series focusing on the valuable role Pilates has played in my life with MS. If you missed the first two, you’ll find them here and here. This column focuses on…

I have had the privilege of watching several children grow into adulthood, and witnessing their transformation has been priceless. I have experienced extreme joy, sorrow, pride, and disappointment; all of the many emotions associated with life itself. However, what I find truly amazing is the innocence and determination of…

Father’s Day is Sunday, June 18, in the U.S. There are a lot of good fathers out there, but one I wanted to tell you about is my friend Jason Clark. He is a caring husband to his wife, Jenny, and an amazing father to his four children.

In case you missed them, here are some news stories that appeared in MS News Today that caught my eye over the past week. Ocrevus Phase 3 Trial Will Explore How Treatment Works by Viewing Changes in Spinal Fluid This new clinical study will try to…

One of the most dispiriting aspects of a chronic illness is that it traps you in your own world. Major events happen but these are filtered against the achievement of actually being able to get yourself to the bathroom. At the time of writing, we in the U.K.

Have you ever hit a brick wall trying to self-inject? I have. It was with Avonex, the first DMD that I used. To make a long story short, after a couple of years of poking myself in the thigh muscle, I just couldn’t do it anymore. That’s…

Editor’s note: Patient columnist Laura Kolaczkowski attended the 31st annual Consortium of Multiple Sclerosis Centers conference in New Orleans. The information in this article was taken from an interview session with the physicians.   The use of gadolinium, which is the contrast agent often used during MRIs for multiple…

(Editor’s note: Tamara Sellman continues her occasional series on the MS alphabet with this first of two parts on terms starting with the letter “E.”) When it comes to multiple sclerosis, mastering an understanding of the disease means you need to mind your Ps and…

This summer I will venture out on an Alaskan cruise with my mother and older sister. The beautiful trip through the Inside Passage is on our collective bucket list and we’ve been planning it for a few years. I am looking forward to the ease of travel afforded…

Catheterization was one of my biggest fears when first officially diagnosed with MS in 1994. As the years went by I thought I might be one of the few patients who do not experience malfunction in the urinary system. Then, in 2012, something changed. I went from having to…