Columns

There’s been a lot of interest in the treatments (including natural treatments) for progressive MS that were presented at the ECTRIMS-ACTRIMS conference in Paris last week. Here are a few of our reports involving that research. #MSParis2017 – MedDay’s High-Dose Biotin, MD1003, Improves Disability in Progressive MS…

“We don’t say the ‘D word’ here,” our instructor said. “Just for tonight, let’s all get into downward-facing cat.” The yoga pose wasn’t one I was comfortable in, but then again, so much about yoga makes me uncomfortable — the clothes, the breathy pseudo-spirituality, the jargon, the way…

Since the approval of the first disease-modifying drug (DMD) for MS back in the mid-1990s, another dozen or so have been added as treatment options. But, just as MS affects each patient differently, so do the drugs. Missing has been a tool to follow MS patients and their…

Editor’s note: Tamara Sellman continues her occasional series on the MS alphabet with this first of two columns about terms starting with the letter L. Symptoms of MS Lesion Lesions are a defining feature of MS. They also are referred to as scars or plaques. These areas of damage…

Last Saturday, I received a FaceTime call from my father who was attending my cousin’s wedding reception. Both he and my mom traveled out of state to attend it, as did the majority of my large extended family. The happy clamor of boisterous chatter made it almost impossible…

Maintaining friendships can be challenging for those with a chronic illness. It may be difficult for friends to understand the changes that take place because of MS. Some changes are quite sudden and visible, others sneak in slowly. Increased fatigue or pain, I find, are most difficult for friends…

Although a smile costs nothing, it can be just what a person needs. Many have encouraged me throughout my life with a smile, thus teaching me how powerful the act of smiling can be. Someone complimented me on my smile this week. I smiled again with a heartfelt…

There’s been some internet buzz recently about the possibility of an over-the-counter allergy drug that helps to repair the myelin that MS damages. The drug is clemastine fumarate, and I suspect that some of that buzz may have been generated by headlines found on Twitter and…

The giant ECTRIMS/ACTRIMS MS conference begins in Paris on Wednesday, Oct. 25, and this column focuses on several of the presentations on which Multiple Sclerosis News Today will be reporting during the week. #MSParis2017 – Mavenclad Reduces Relapses, Prevents New Lesions in Many RRMS Patients, Presentations Will…

It was one of those mornings the day after, when I was moving like a zombie before they became ubiquitous. The night before had been my 30th birthday ― I was now an old bloke. About 20 of us had gathered in an uber-cool West End London restaurant, drank…

Those of us who have MS know that our disease can be invisible. We don’t always stumble when we walk. We don’t always use some sort of an assistive device that would alert people to our illness. So what we often get from those who don’t know better are those…

By the grace of God, I am a naturally positive individual who lends optimism and hope to even the bleakest of situations. Because of this, it is difficult to find me in a situation when my auspicious nature tires; after all, we find out the most…

There are two doctors. Here’s your choice: One has a patient-centered approach to care, spends more time with you during appointments, and is more empathetic with your concerns. On average, patients under this doctor live longer. The other doctor spends less time in the appointment, struggles to listen…

There’s a difference between being lucky and being blessed. I learned that difference in 1992, after giving birth to our son. Once the doctors counted 10 toes, 10 fingers and we heard the baby’s first cry, I remarked to my husband how lucky we were.

I have every single malady associated with MS. I’m absolutely positive. Because whenever I find out about a new one, or a new study that says we don’t sleep well, or we twitch or tremble, or suffer from this deficiency or that, I’ve got it.

The year’s largest gathering of multiple sclerosis “minds” starts on Oct. 25 in Paris. More than 8,000 neurologists, researchers and others who specialize in treating and curing MS will be attending MSParis2017. It’s a joint meeting of the European and the Americas Committee for Research in Multiple Sclerosis…

Common Allergy Treatment Restores Protective Neuron Coating in MS, Trial Suggests This is the kind of news we all hope to hear. A treatment that will repair our frayed “wires” and, in doing so, restore some of the function that MS has stolen from us. This is…

Both of my sons — and, if I’m being honest, my husband — love Kraft Macaroni & Cheese. Yes, that horrid stuff that comes in a blue box, the kind that you make with a packet of powdered cheese, milk and butter. Whenever I put some on the table…

  About 10 years ago, in the days before my MS, I had a whole raft of self-imposed jobs. As a new age man, one of these was doing the washing. Yes, this combated the usual bloke’s role in a heterosexual household, but to counter this, I was very…

If you have MS, you’ve probably used a specialty drug. My first was Avonex, which I began to use about 1998. Several others followed. There’s no formal definition of a specialty drug, but these therapies have several things in common. First, they’re expensive. According to the vice president in…

(Editor’s note: Tamara Sellman continues her occasional series on the MS alphabet with this column about terms starting with the letters J and K.) Symptoms of MS Kyphosis More commonly referred to as “hunchback” or “dowager’s hump,” kyphosis is a term that refers to an outward curvature of…

Some days are easier than others, and some days are just not easy at all. Today I find myself in the latter of the two. It’s Monday morning, and my Sunday was insane: insanely busy, insanely fun, and insanely difficult. While…

I’ve been at a conference the last few days where scholars from around the world are discussing health literacy. It’s a subject much more complicated than just wondering at what level a person might read, or if they can read at all. It’s also a discipline rooted in…

For those of us in the workforce, our MS can sometimes make a workday challenging. The Americans with Disabilities Act allows for an employee to request reasonable accommodations from their employer. Included in the act are three broad accommodation categories. One focuses on the hiring process, and…

We are familiar with the “why me” moments? I reference this often because it is a recurring subject in the lives of people with chronic illness. As a little girl I’d ask my parents why my heart is sick, and as an adult, I still ask why have I…

Lemtrada Prevented Progression of Multiple Sclerosis for Five Years, Study Shows Full disclosure: I’m being treated with Lemtrada, so any news about it lights up my radar like a Christmas tree. I’m 10 months post-round 1 and am doing well — and this news looks like it’s…

It looks like a dog’s leash, but it isn’t. I put in “dog’s lead” and “disabled apparatus” into my first Google search and fittingly was taken down into a rabbit’s warren of equipment for psychically challenged dogs. Who knew? It’s a nifty bit of kit for moving your leg…

I’ve had a cold for two weeks. So, I’ve been more tired than usual. Too tired, in fact, to write the column that was supposed to post last Tuesday. (I apologize to all of you who wait, with bated breath, for the appearance of the MS Wire each…

I am an avid dog lover and very involved in volunteering with the golden retriever rescue here in Southern California. On any given day, you will find my 8-year-old rescue, Abby, here along with two to three other happy golden retrievers. I may have  rescued Abby physically, but there…

When talking about MS research, we tend to focus on drug development because improved therapies, and even the cure for MS, will come from pharmaceuticals. But what do we know about other MS research that doesn’t involve taking a pill or enduring an injection? I’m talking about those…