July 15, 2016 Columns by admin Patients Need To Know What Drugs Do Inside Our Bodies Oral therapy Tecfidera (dimethyl fumarate) seems to be emerging as a first-line treatment for relapsing multiple sclerosis ā according to Biogen, the company that developed it. Thatās good news, and something we need to know. The company agrees that for some time, the long-term effectiveness and safety of this oral…
July 13, 2016 Columns by Laura Kolaczkowski Patient Recruitment for Clinical Trials: Something To Chew On This chewing gum handout in the exhibit area of the recent Drug Information Association (DIA) 2016 meeting says it all from the pharmaceutical company perspective – recruiting patients for their studies is often a distasteful and difficult process. While I appreciated the gum in this package, this image left a…
July 11, 2016 Columns by Laura Kolaczkowski Patient Engagement in Drug Development: DIA 2016 When I see a new drug for MS come to market, I only think of the company behind that product ā it could be one of the big names such as Genentech, Genzyme, EMD Serono, Biogen, or one of the many other players in the field.Ā I never stopped to…
July 11, 2016 Columns by admin MS Patientās Pick of the Weekās News: Tremors, Tecfidera, MRI, Progression, and Caregivers There have been plenty of interesting stories onĀ Multiple Sclerosis News Today overĀ the last seven days. Here is my Pick of the Week’s news. Tremors Linked to MS Poorly Treated with Symptomatic Medication, Study Finds It will come as no surprise to those of us with MS that disabling tremors,…
July 8, 2016 Columns by admin Have Your Say About Disease Modifying Therapies for RRMS You have just one week from today to have your say about the effectiveness of various disease modifying therapies (DMT) used to treat relapsing remitting multiple sclerosis (RRMS). Public comments are welcome in response to an early draft paper that is planned to be the basis for…
July 5, 2016 Columns by Laura Kolaczkowski Henrietta Lacks’ Legacy of Informed Consent A few months ago I had the honor of meeting David Lacks, a grandson of Henrietta Lacks. It was at a large meeting and not everyone in the room understood his link toĀ our medical care; the people who already knew about grandmother had most probably read the book…
July 5, 2016 Columns by admin MS Patient’s Pick of the Week’s News Developments of treatments for MS dominate my pick of the week’s news in MS News Today. Included isĀ aĀ vaccine and a new oral drug. Vaccine to Treat Multiple Sclerosis Showing Promise and Soon to Enter Phase 3 Clinical Testing This is something a bit different because,Ā usually vaccines are designed to…
July 1, 2016 Columns by admin MS Patients Want Research to Focus on a Cure, Not Possible Causes As interesting as it can be for patients with MS who hear about work being done to find the causes of multiple sclerosis, what we really want to see is research that is carried out to find a cure. Nothing more, nothing less. Of course, the development of new treatments…
June 30, 2016 Columns by admin To Fight MS, Drink Four Cups of Coffee a Day? Ready to fight MS? Well, you can start first thing every day. So, how do you start your day ā a coffee maybe, or a great cup of tea? Tea is my choice but I also enjoy a magnificent cup of Spanish coffee. According to a number of recent studies,Ā coffeeĀ and…
June 29, 2016 Columns by admin MS Clinic Using ‘Liberation Therapy’ Being Investigated for Alleged False Claims Allegations that false claims regarding treatment were made to potential patients, as well as one of its proponents having at least one fake degree, are being leveled against a stem cell clinic that was operating in India two years ago. The clinicĀ was notĀ offering HSCT, but rather a form of combination…
June 27, 2016 Columns by Laura Kolaczkowski Engaging Thoughts Editor’s Note: Multiple Sclerosis News Today welcomesĀ Laura Kolaczkowski to our team of Patient Specialists and MS bloggers. As you will read in her introductory post below, Laura brings to her new column a wealth of Multiple Sclerosis related insights, both as a patient and activist/advocate for raising awareness and research…
June 27, 2016 Columns by admin An MS Patientās View: Ianās Review of the Weekās News In my weekly news review, I take a brief look, from my MS patient’s view, at a few of the stories behind the headlines that have appeared onĀ Multiple Sclerosis News Today over the last seven days. 14 Celebrity Ambassadors For the Multiple Sclerosis Cause It looks as…
June 24, 2016 Columns by admin MS Patients Need a Drug Therapy Without Awful Side Effects Never having been offered, let alone received any disease modifying therapy, I can address the subject of disease modifying therapies, and their side effects, with complete impartiality. Of course, the reason for the lack of any medication is because none has yet been approved for use with MS patients who…
June 23, 2016 Columns by admin MS is Linked to Glandular Fever, I Have No Doubt In my mind, MS is linked to glandular fever. From personal experience, there is no room for doubt of any kind. Trouble is, though, that my experience and belief is not proof. And that is why I find that efforts to establish a definite link between glandular fever, often known…
June 22, 2016 Columns by admin Unexpected Diversity of Crucial Brain Cells Discovered in MS Mouse Study Discovery of an unexpected diversity of oligodendrocytes in mice could lead to new insights into mechanisms of degeneration and regeneration in multiple sclerosis and other diseases where myelin is lost. Oligodendrocytes, a type of brain cell that plays a crucial role in diseases such as MS, are more diverse than…
June 20, 2016 Columns by admin MS Weekly News Review ā June 20 Welcome to our very first weekly news review. Starting today, it is the intention to use the Monday column of this blog to cast a look back at the previous weekās editorial content of this MS site. In particular, weāll be looking at the wide range of topics covered and…
June 17, 2016 Columns by admin Optic Neuritis in MS So Difficult To See Optic neuritis is one of the symptoms of which those of us who live with multiple sclerosis on a daily basis know can set us apart from others. We are fully, and often painfully, aware that everyone is different. We all experience a different array of symptoms to similarly different…
June 16, 2016 Columns by admin Alone with MS? Ā Are You? Really? Am I alone with MS? I do wonder that, sometimes; at those times of fatigue and frustration when the darkness envelopes you. When you pound the floor having fallen again; when you curse this monster inside you; and when you cry out āWhy me?ā But, of course, I am not…
June 15, 2016 Columns by admin Medical Cannabis Has a Role to Play in MS Treatment Medical cannabis is subject to laws relating to the growing, possession, transport, and use of marijuana. These vary from country to country and, in the United States, from state to state. There are also differences between marijuana for general and recreational use and for the same product for medical use.
June 14, 2016 Columns by admin Processed Foods and Additives May Lead To MS, Autoimmune Diseases Processed foods have been added to the list of “no-no” items that we are not supposed to eat if you, like me, are unfortunate enough to have MS. We were already warned against gluten, salt and various other ingredients in our diet; now it’s processed foods and additives. This is…
June 13, 2016 Columns by admin Stem Cell MS Patients Lead Normal Life Thanks To aHSCT Procedure People with MS who were involved in a long-term clinical trial are out and about enjoying a full and normal life with no signs of the disease. This follows their recovery from the stem cell transplants involving aggressive chemotherapy, or aHSCT as the procedure is known. Results of the clinical…
June 10, 2016 Columns by admin MS life expectancy discussed but not all treatments considered When talking about how treatments affect MS life expectancy, itās wrong to leave out HSCT. Sorry, but itās just plain wrong. How can anyone write a supposedly authoritative article about MS and life expectancy, talk about modifying how the disease affects people who have it, yet totally ignore potentially the…
June 9, 2016 Columns by admin Is MS hereditary? Yes, According to New Study Some forms of multiple sclerosis are hereditary after all. After many years of saying that MS is not passed down the generations, new research now says the opposite. Although past studies have suggested that genetic risk factors could increase the risk of developing the disease, upĀ until now, there has been…
June 8, 2016 Columns by admin MS is a lonely road. No kidding! Being lonely can be very difficult to define as it is not only the popularly assumed situation of being alone. You can be lonely in a room full of people if you donāt know anyone well enough to speak to them; conversely, you can be happy when alone, in your…
June 7, 2016 Columns by admin āMS Does Not Remitā ā Call to Change RRMS Name to Relapsing MS MS does not remit and the out dated term causes many people to delay taking medication, says Dr Patricia Coyle, Founder and Director ofĀ Stony Brook’sĀ MS Comprehensive Care Center. Dr. Patricia Coyle. Last week, at the CMSC Annual Meeting in Maryland, during a live-streamed presentation covered byĀ Multiple SclerosisĀ News Today, she…
June 6, 2016 Columns by admin Stem Cell Transplants – an Exciting MS Therapy Development Stem cell treatment of MS, whichĀ came under the spotlight at last weekās 16th Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC) when Dr. Mark Freedman discussed the procedure, is an exciting area within the development of therapies. Dr. Freedman, professor of medicine (neurology) at the…
June 3, 2016 Columns by admin Do MS and Epilepsy share a link? I Have Both ByĀ the time I wentĀ through various tests that led to being diagnosed with multiple sclerosis 14 years ago, epilepsy had already been part of my life since the age of 19. No oneĀ mentioned any link. The neurologist’s words still ring in my ears. Having already told me that MS was theĀ diagnosis,…
June 2, 2016 Columns by admin Can Vitamin D Supplements Prevent MS or Keep Symptoms from Worsening? There has been a great deal of talk and conjecture about the relationship between multiple sclerosis (MS) and vitamin D, often linked to living in an area lackingĀ sunshine. Indeed, when I lived in the United Kingdom, which is notorious — or should be — for seemingly endless gray skies and…
June 1, 2016 Columns by Elissa Holzman People With MS: Here Comes the Sun! Iām sure Iām not alone when I say that Iām glad to be done with cold and dreary weather. Bring on the sunshine! But my excitement is tempered a bit because, like many people with MS, I find the heat exhausting; it saps my energy and makes it even harder…
June 1, 2016 Columns by admin Side Effects of Zinbryta, an FDA-approved MS Drug, Need to Be Considered Too Editor’s Note: The opinions expressed in this blog post are not the opinions of Multiple Sclerosis News Today. Our MS Blog series offers patient experts to engage in patient-focused topics that are meant to spark discussion and debate in the Multiple Sclerosis community. The opinions of our bloggers are entirely…