Columns

Would You Fund My MS Treatment?

I’m not asking for your money.  (At least not yet.)  But I’ve recently seen a lot of news stories about MS patients who are. Multiple sclerosis battler fights for $200,000 treatment Or… Fundraiser for Deanna Or… Burbage dad’s £50,000 appeal…

Avoiding the Black Hole of MS Depression

The black hole — that is the name I have given to my MS depression (yep, I name my depression. Doesn’t everyone?). It’s so easy to become depressed when you have MS. The disease is always on our minds. We are always thinking about how to maneuver our daily life…

Getting in the Front Door

It’s happened to us all.  You arrive at a business and discover there are steps at the entrance. A few years ago my wife and I arrived to check-in to a 4-star hotel near The Wheel in London, and discovered that there were a dozen steps at both of…

MS Research and the U.S. Department of Defense

I recently had the opportunity to serve as a consumer reviewer of research applications submitted to the Multiple Sclerosis Research Program (MSRP) sponsored by the Department of Defense. I was nominated by the Accelerated Cure Project for MS for this role.  As a consumer reviewer, I was a full…

Shake, Rattle, and Spill? Tremors in MS

I live in a part of the country with beautiful green forests, mountains, abundant freshwater, and saltwater.  If you have seven hours to spare, you can drive across the state and experience desert, orchard, mountain, alpine meadow, rainforest, and the Pacific Ocean. This beautiful land also comes with some…

Stand in the Midst of MS

One of my favorite gospel songs is “Stand” by Donnie McClurkin. There’s a verse that says, “after you’ve done all you can, you just stand.” My spirit reacts to this song each time I hear it. It satiates my soul. I love music and believe it is a gift.

Brace Yourself for MS

One of the MS blogs that I follow is written by Jen, who lives in England.  It’s called Tripping Through Treacle.  Doesn’t that neatly sum up the lives of many of us in just three alliterative words?  From MS newbies to old-timers like me, we worry (or have…

Fall Is Here … Not Literally, I Hope

Fall is here and things are a little more slick. Walking for most of us with multiple sclerosis involves weakened legs and lack of balance. We have daily challenges getting around in good weather, let alone bad. Add a little rain, a few gusts of wind, and some bone-chilling cold and…

MS Drugs – Who’s Using What?

Most of us who live with multiple sclerosis also live with a disease modifying therapy (DMT) — a drug that, we hope, will positively modify the course of our disease. One of the earliest of these was Avonex, a weekly injection into the muscle. I was one of those…

Hormones and Diet Help Relieve Woman’s MS-Related Fatigue

A woman who says her life was made miserable by fatigue caused by multiple sclerosis (MS), claims she is on the road to recovery because she has taken control of her body and is using a combination of hormones and diet. Instead of relying on conventional treatment, she is…

If You’re Not Happy and You Know It, Get Some Light!

Our days have gotten shorter since June 20, but somehow I managed not to notice until a few weeks ago. Perhaps it is because we had a late summer here in the Northwest, and could comfortably leave home without a coat until late September. That’s also the time that…

Are the Benefits Worth the Risks of Lemtrada?

My neurologist calls Lemtrada “HSCT lite.”  She says that not only is the drug able to reduce exacerbations and limit the overall progression of multiple sclerosis, it’s actually reversed some symptoms in some of her patients.   I guess I’m going to find out if she’s right about…

My MS and Faith of the Mustard Seed

I have written nine articles so far with shared ideas of what has helped me in this overwhelming battle with multiple sclerosis. My experiences and successes are shared in the hope that others will be helped as well. This 10th article is about what comforts and sustains me the most…

An MS, Migraine, Marching Band Kind of Day!

I work full time in public health, and some days are spent ‘out in the field’ visiting clients in their homes. It requires careful planning to ensure that I have adequate water, food, medications, and layers of clothing for homes that are too hot or too cold.  I research…

Is Your MS Rocking Out on Heavy Metals?

The jury is still out on the role, if any, that heavy metals play in multiple sclerosis. Many theories have been floating around for years regarding the possible connection between MS and dental amalgams, pesticides, additives to food, lead paint in older homes … and the list goes on. The…

Influenza, Vaccinations, MS

Should those of us with multiple sclerosis get vaccinated for influenza or not? It’s a debate that takes place in many MS communities each fall. The argument against the flu immunization is based on half-truths and flat-out misconceptions — and a lot of anecdotal tales that don’t hold up to…

MS, Osteoporosis and Men – What a Guy Needs to Know

Osteoporosis (fragile bones) is only a women’s problem, right? Wrong, especially if you have multiple sclerosis — as I’ve discovered. Osteoporosis causes bones to become weak and brittle.  A fall that probably wouldn’t harm a healthy person can easily break the bone of someone with osteoporosis.  When the…

Icy Cold Fingers: MS Broke My Thermostat!

It’s definitely autumn here in the Pacific Northwest. Misty, gray mornings give way to breezy sunshine in the afternoon … for a couple of hours anyway, until the evening rain arrives. This is the time of year that the weather forecasters compete to see who can come up with…

Vitamin D: You Are What You Eat

A few weeks ago, I visited my general practitioner for a yearly physical. I was expecting him to harp on my weight, cholesterol, blood pressure — any of the other myriad issues that crop up as we age. But surprisingly, I left the office with my self-esteem firmly intact. (In…

Pilates: A Good Therapy for MS?

Have you tried Pilates to improve your mobility?  When my wife and I tried it, a few years ago, I thought that it was sort of like doing yoga stretches using exercise equipment.  It felt good and, for the short time that I did keep it up, Pilates seemed…

Dancing Doodle

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