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The Hidden Costs of Multiple Sclerosis

MS is sneaky. It is expert at evading detection and diagnosis, and often brings a host of invisible symptoms that may come and go at random. MS also brings invisible costs — expenses beyond the obvious medications, supplements, assistive devices, and healthcare. I am not talking about externalities,…

About America’s Healthcare Puzzle

There’s been lots of chatter on social media since the U.S. House of Representatives passed a measure last week that’s intended to repeal the Affordable Healthcare Act (Obamacare) and replace it with a new healthcare law. Lots of us with serious medical conditions are: a) worried, b) angry,…

Look What the Cat Dragged In!

Like one third of America, I’m a cat lover. I’ve had kitties in my house since I was a child, often in sets. Currently, I’m the proud parent of two fur babies—Ivan (the tabby) and Baker (the Wegie)—and they’re a great source of joy, entertainment and…

Losing Our Independence Due to Multiple Sclerosis

Losing our independence due to multiple sclerosis is a profound loss. With that loss comes the grieving process and inevitable change. On Grief.com in “A Message from David Kessler,” he discusses the five stages of grief: denial, anger, bargaining, depression and acceptance. I have experienced all of these…

Disability Activism Beats Doing Housework

I now introduce myself as a disability rights activist. I began to pay attention to local politics and related activities last fall. Our city redevelopment plans are charging along, without any city staffer to pay attention to the needs of the disabled. As such, I’ve been making the…

NYC Subways: A Tough Ride With MS

Have you ever been on a New York City subway? I grew up in the Big Apple, and I used to love riding the subway as a kid. I’d travel all over the city without a problem. Not so today. Not so since MS changed my track.

Calming the Hidden Beast of Silent Inflammation

The inflammation in our bodies can be very sneaky. I am not talking about the good inflammation, also known as the group of hormones called eicosanoids (eye-KAH-sa-noids). This group of hormones provoke our immune system to fight diseases, viruses and other invaders and help in repairing tissues…

Small Study Shows Unexpected Reversal of Some MS Symptoms

I don’t usually write about drug studies, especially ones that are tiny and preliminary. But an unexpected result has peaked my interest in this one. Researchers at The University of Queensland in Brisbane, Australia report that half of the progressive MS patients in their study of…

Hypothyroidism and What It Shares with MS

In 2004, I was diagnosed with hypothyroidism, a condition in which the thyroid is underactive and doesn’t product enough important hormones. Six years later, I was diagnosed with multiple sclerosis (MS). Naturally, I became curious as to whether a link might exist between between hypothyroidism and MS. I am…

The Cluttered Consequences of Multiple Sclerosis Fatigue

Multiple sclerosis causes debilitating fatigue. The following photographs show, without censorship, what my fatigue leaves undone. The homes of everyone I know have living rooms without sweaters tossed over the back of chairs. Their floors are not an obstacle course. They do not have piles of mail, notes, drills,…

A Very Hip Story: ‘The Shower That Ate Me’

It was three years since I’d seen my best mate Nigel. The last time had been when we said goodbye at London City Airport after our three-day sozzled sojourn (OK, drunken trip) round the Scottish Isle of Islay. To the uninitiated, a pilgrimage for those who worship peat in their…

Address Primary Symptoms to Avoid Secondary Ones

Multiple sclerosis is a very complex disease that attacks the central nervous system. The symptoms MS generates are random, affect everyone differently, and are categorized either as primary MS, or secondary MS, symptoms. Primary MS symptoms are the direct result of the disease itself — byproducts of the damaged…

There’s Something Wrong with Both of Us

There are a few moments when life changes. In my day, it was meeting your partner across a crowded room. Now it’s sadly the flick of an app. What hasn’t changed is that only later do you realize this really was a moment. This isn’t a story about romance…