Columns

New Spherix Report Finds PPMS Treatment Increased Significantly in Past Year Primary progressive MS has, in some eyes, been the stepchild of the disease-modifying therapies. PPMS patients move steadily downhill, and some believe treatments haven’t kept pace with their disease. Now, the research company Spherix has news…

Mary Schmich, a columnist for the Chicago Tribune, wrote a 1997 essay aimed at graduates. In it, she shared many practical nuggets of wisdom such as “Floss,” and thoughts like, “Don’t waste your time on jealousy. Sometimes you’re ahead, sometimes you’re behind. The race is long and, in the…

Well, I’m usually fairly upbeat, but this time, it’s going to be beyond me. We’ve all had relapses — I think I’m in the fitting cliché of being on my last legs. I can, on a good day, transfer on my own from the bed to my trusty…

I’m not a fish eater. I never have been. Unless the seafood is lobster, shrimp, clams, or crab cakes (pickin’ the crabs is too much work), I’m not interested. Is the fact that I eat very little fish one of the reasons why MS attacked me about 40 years…

  Editor’s note: Tamara Sellman continues her series on the “MS alphabet” with this column referencing terms starting with the letter “S.” Fourth in a series of five. Symptoms of MS Scotoma Scotoma describes a vision problem in which the presence of “blind spots” or other partial vision…

I was throwing the ball for my golden retriever when it bounced onto an unreachable ledge. I watched her become antsy for a ball she could see but not reach and wondered what she would do. Her frustration gave way to a solution as she jumped from…

Sometimes they are called “sticky songs,” better known by their common name “earworms.” Earworms are those musical phrases that get stuck in our head that we hear over and over. It’s much like those worms underground that burrow and twist and turn, constantly finding new territory to inhabit.

“Today we’re going to talk about the Four Ps,” Stephanie says. “You’ve probably heard of these already, but let’s go through them anyway.” I look at her the way a dog tilts its head when it hears a high-pitched whistle. Like…

In March 2003, I found myself suddenly unable to drive or even walk a straight line through the house. MS had arrived with several active lesions in my brain, including one in the brainstem, which affected my balance and speech and created significant limitations in my usual activities. One…

Last week, I wrote about the incessant emotions of MS and chronic illness. This week, I will focus on living in the present moment. Remaining on a quest to continue the depiction of real life with MS for Multiple Sclerosis Awareness Month 2018, this week’s column will…

After I wrote about pediatric MS earlier this month, a reader commented: “I think it would behoove your editorship to follow up to address to audiences…symptoms that typify the early-age demographic.” That’s a good point. So, I drilled deeper into how MS is handled in people younger than…

Biogen and AbbVie Voluntarily Withdraw Marketing Authorizations for MS Therapy Zinbryta You may have heard about this already, so forgive me if it’s not new to you, but it’s important information. A dozen cases of encephalitis or meningoencephalitis have been reported in patients using Zinbryta, and…

It’s been a grueling three weeks. Birds ate my breadcrumb trail long ago. I was too tired to follow it anyway. Stumbling about has definitely been beyond me! I’ve just shaved what had become a beard and showered, which, mixing my stories, made me feel like I’d been living on…

You know about credit cards that offer you cash back for the items you buy. How about getting cash back for selecting specific healthcare service providers for things like medical tests and lab work? Go to your insurance company’s website, then enter your zip code and the service…

Editor’s note: Tamara Sellman continues her occasional series on the “MS alphabet” with this column referencing terms starting with the letter “S.” Third in a series of five. Symptoms of MS Sensory problems Many people with MS experience a wide array of sensory problems caused by nerve damage…

I am a sensitive individual by nature. Good, bad, or insignificant, that is part of my genetic makeup. I cry when the dog gets hurt in the movie, at every episode of “This Is Us,” and every time I hear “O Holy Night” at Christmas Eve services. While sometimes endearing,…

While at the ACTRIMS Forum 2018 (which stands for Americas Committee for Treatment and Research in MS), I was surprised to see a colorful display of orange-and-teal colored sock monkeys mixed in with the pharmaceutical company and advocacy organization displays. It was the display booth for Oscar…

“What is wrong with you?” I have been asked this question numerous times by significant people in my life. The most recent was a few days ago. The question usually occurs during the times I have an emotional “meltdown.” Whenever I hear it, I get defensive, thinking that I…

The age at which a person is diagnosed with MS is usually between 20 and 50, according to the National Multiple Sclerosis Society. But it can be diagnosed in people much younger. In fact, of the estimated 400,000 people with MS in the United States, 8,000-10,000 are…

Epstein-Barr Virus Found in Brain Cells of Many MS Patients, Study Reports This study is yet another of several over the years that have suggested that there’s some sort of link between the Epstein-Barr virus and multiple sclerosis (MS). (Fatigue and muscle weakness are among the…

Mahatma Gandhi once said, “There is more to life than increasing its speed.” That’s not a lesson modern American culture has taken to heart, is it? Seems like we’re more inclined to take Daft Punk’s advice and do everything “Harder, Better, Faster, Stronger.” And that’s all well and…

Usually, I’ve got a fair idea of where I’m headed in my column. This time, I really don’t. I’m confronting something. Maybe nothing. It’s as clear as the cliché involving wet, clingy earth. For the first time since the last week in November 2017, I’ve stopped taking antibiotics. That’s…

Editor’s note: Tamara Sellman continues her occasional series on the “MS alphabet” with this column referencing terms starting with the letter “S.” Second in a series of five. Symptoms of MS Speech problems It’s estimated that nearly half of all people with MS struggle with speech…

I have been contemplative these last few days, lost in thought regarding the state of the MS. I am not sad or upset, simply in observation mode. Reaching for what may have precipitated this gentle melancholy, I realize I am on the precipice of my 49th year. While MS continues…

I fell out of sight in February, thanks to a case of the flu. Influenza B and its lingering side effects took me out of action from almost everything except sleeping, but I’ll save those details for another story. As I come out of my flu-induced fog, I see…

It’s frightening to feel sick most of the time. Frightening, scary, overwhelming, unnerving, and hellish. Whichever negative words you choose are the right ones to describe how it feels to live with MS. People with MS are snowflakes, and our emotions are quite often the same. After three-plus…

I had the flu for several days, and it was disastrous. So, I did not write last week. I hope you missed the column as much as I missed writing it and hearing from you. Several of my friends have the flu as well. This is an awful…

The newest kids on the MS block, disease-modifying therapies (DMT) such as Genentech’s Ocrevus (ocrelizumab) and Sanofi Genzyme’s Lemtrada (alemtuzumab), are attracting a lot of interest these days. But, some DMTs that have been around for more than two decades are still being prescribed by a lot of neurologists.

So many of us are affected by disabilities, and day-to-day we strive to live our lives the best we can. The struggles due to these disabilities can consume a lot of our precious and sparse energy. Anything that can be modified in the home, at businesses, or anywhere we choose…

Pilot Study Is Testing Whether Mediterranean Diet Can Help MS Patients There’s been a good deal of news recently about the possibility that bacteria in our stomachs have an impact on our MS. There’s also been talk, for a long time, about whether certain diets can improve…