Columns

This Too Shall Pass

I posted this meme on social media last weekĀ with the caption ā€œCurrent Life Status,ā€ hoping a laugh might help matters. Iā€™m sorry to say things didn’tĀ improve afterward. Iā€™m not a Debbie Downer or a Sad Sack by nature, and I donā€™t often write about my struggles here…

MS and Incontinence

Another of those things I was never warned about. Maybe if I’d been assigned a local MS nurse at the beginning of my diagnosis, then eruptions out of my pants could have been averted instead of finding out the wet way. I only discovered my local MS nurse…

My Lemtrada Journey: At 9 Months, a Cane Tells a Tale

Back in May, when I updated everyone about my Lemtrada treatment at six months post-infusion, I began with a question my wife asked: “Do you think you’re walking better?” And, I thought IĀ was. Maybe. Just a little. I was walking a bit more smoothly, my left foot…

Choosing Happiness

I find it funny when people ask how and why I am so positive and happy. Am I supposed to be sad and negative just because I have multiple sclerosis? There are certainly days when the pain and/or side effects get me down, but gratefully, these are exceptions…

Thereā€™s an App (Maybe Too Many) for That!

How many hours do the pharmaceutical companies think we have in our day? I ask because almost all of them have come up with very slick tools to use, particularly mobile apps, to help us improve our daily lives with MS. Not coincidentally, these apps also provide their…

Walking the Dog, an Adventure Story

It’s 7 in the morning, and it’s raining cats and dogs. I need to walk our dog and the thought of it is not very appealing. We live in a condo, so this activity requires getting dressed, squatting down to feed Joey, squatting again to get him hooked…

My Thoughts on Being a Grandparent with a Disability

I had always envisioned that I would be an active and healthy grandparent when the time came ā€” not one with a disability. I was diagnosed with primary progressive multiple sclerosis (PPMS) in the summer of 2010, which also happened to be the same year my first grandchild…

Disjointed: Living the New Netflix Sitcom

I was going to write about something else this week and then … I got STONED! Those aren’t words I thought I’d ever write. I’d been a kid during the 1960s, but later on had duly done my literary homage by mainlining Jack Kerouac (yes, I know that…

When Do MS Symptoms Become a Relapse?

Am I having an MS relapse? I saw that question asked the other day on one of the social sites I follow. At first, I thought, “Gee, doesn’t everyone with MS know when they’re having a relapse?” Then I realized thatĀ for several years after I was diagnosed, I…

Enjoy the Journey While Traveling with MS

I have always had the travel bug, and I’ve been to a myriad of countries and cities around the world. From far-away foreign cities to exotic beach locales, I find great pleasure in refining my cultural literacy. That refinement took a back seat after my diagnosis and subsequent…

#Sleeptember is Here!

What better time of year to talk about getting good sleep than heading into the fall season, which is followed by the dark days of winter? Although we are not furry creatures who curl up in a cave to sleep through the winter, many of us wish we could do…

Will You Try an Anti-Inflammatory Diet for Your MS?

The role that diet and lifestyle have on the course of MS is a matter of debate. There is a great deal of conflicting information on the topic, and patients may need to look beyond their neurologist or primary care physician to create a dietary approach to MS.

We’re Still Here

We celebrated my dear friendā€™s pastoral anniversary on Sunday, and the service was dynamic. Although I do not want to make this column a religious sermon, I hope toĀ use the message from the guest speaker to inspire you. It does not matter what faith, color, or creed that…

My Wee Crisis, Part 2

It was a government letter; I opened it with due trepidation. A call for jury service, so not bad news and a chance to do my civic duty. But at this point I was stumbling to the toilet nearly every 15 minutes. This and needing a cab to get…

Donating to MS: Where Does the Money Go?

You’ve just “biked for MS” or your friends have just “walked for MS” and they’ve collected a lot of pledges. Maybe you sent out letters to your friends asking them to donate a little cash to help find a cure for this disease that has impacted our lives.

Making Plans with an Unpredictable Disease

I love getting together with family and friends, volunteering at the golden retriever rescue, attending events and keeping my calendar full. It is fulfilling to make plans, but as many of you with MS know, it is a paradox. The very plans that bring hope and happiness also…

Ocrevus and Sweating Out MS

Many of you are considering making the switch to Ocrevus (ocrelizumab) as your disease-modifying therapy for multiple sclerosis. This is a switch I made recently. There are so many questions and unknowns about how this treatment might help me, and Iā€™m trying to…

Get Me (with My MS) to the Beach

I live at the beach, but I can’t get onto the beach ā€”Ā not easily, anyway. My MS means that I need to use a beach buggy; sort of an electric wheelchair with super-big tires, to get around on the sand. For others who are not as fortunate as…

The Pinball Wizard of Nerve Pain

SometimesĀ the nerve pain caused by MS reminds me of a pinball machine. With the slap of the paddles the ball surges, bouncing sporadically, bells ringing, lights flashing; then the ball quietly comes to a stop and all of the commotion is silenced until the next slap. The sharp…

My Wee Crisis, Part 1

Having not stood on a stage and attempted stand-up for some 30 years, I’m not in the habit of writing jokes for myself. Obviously, these days, I’d be a sit-down comic anyway, but I think my opening line would be a doozy: “As I self-catheterize, I’m probably the…

How’s Your MS? Ask This App

I’ve just added an app to my iPhone that’s designed to track how I’m doing day-to-day with my MS. Not only can the data it collects be useful to me and to researchers, the app also is fun to use. The app is called elevateMS. It’s…

Using Peace of Mind to Cope with MS

In this chaotic worldĀ in which we live, it is hard to be still, to sit with nothing but our thoughts. There is always something to worry about or preoccupy our minds that never allows us to rest in the present. As I sit on the patio and write,…